The following papers were used in the research leading to Independio. Each of these papers justifies why Independio is an excellent digital technology intervention for adult autism.

Ahrens, K. (2024). Annual data report FY 22-23. Pennsylvania Department of Human Services Office of Developmental Programs. https://palms-awss3-repository.s3.us-west-2.amazonaws.com/MyODP_Content/Everyday+Lives/ODP+Annual+Data+Report+FY22-23+FINAL.pdf

Beek, J. J., Wegen, E. E. H. van, Rietberg, M. B., Nyffeler, T., Bohlhalter, S., Kamm, C. P., Nef, T., & Vanbellingen, T. (2020). Feasibility of a Home-Based Tablet App for Dexterity Training in Multiple Sclerosis: Usability Study. JMIR mHealth and uHealth, 8(6). https://doi.org/10.2196/18204

Ben-Zeev, D., Scherer, E. A., Gottlieb, J. D., Rotondi, A. J., Brunette, M. F., Achtyes, E. D., Mueser, K. T., Gingerich, S., Brenner, C. J., Begale, M., Mohr, D. C., Schooler, N. R., Marcy, P., Robinson, D. G., & Kane, J. M. (2016). mHealth for Schizophrenia: Patient Engagement With a Mobile Phone Intervention Following Hospital Discharge. JMIR Mental Health, 3(3). https://doi.org/10.2196/mental.6348

Bereznak, S., Ayres, K. M., Mechling, L. C., & Alexander, J. L. (2012). Video Self-Prompting and Mobile Technology to Increase Daily Living and Vocational Independence for Students with Autism Spectrum Disorders. Journal of Developmental and Physical Disabilities, 24(3), 269–285. https://doi.org/10.1007/s10882-012-9270-8

Bimbrahw, J., Boger, J., & Mihailidis, A. (2012). Investigating the efficacy of a computerized prompting device to assist children with autism spectrum disorder with activities of daily living. Assistive Technology, 24(4), 286–298. https://doi.org/10.1080/10400435.2012.680661

CDC. (2024, July 19). Data and Statistics on Autism Spectrum Disorder. Autism Spectrum Disorder (ASD). https://www.cdc.gov/autism/data-research/index.html

Centers for Medicare & Medicaid Services. (2024). Application for a §1915(c) home and community-based services waiver. https://www.pa.gov/content/dam/copapwp-pagov/en/dhs/documents/services/disabilities-aging/documents/developmental-programs/Adult-Autism-Waiver-Effective-5-1-24.pdf

Cheema, K., Dunn, T., Chapman, C., Rockwood, K., Howlett, S. E., & Sevinc, G. (2024). A systematic review of goal attainment scaling implementation practices by caregivers in randomized controlled trials. Journal of Patient-Reported Outcomes, 8, 37. https://doi.org/10.1186/s41687-024-00716-w

Cook, A. M., Polgar, J. M., & Encarnação, P. (2020). 1 – Principles of Assistive Technology: Introducing the Human Activity Assistive Technology Model. In A. M. Cook, J. M. Polgar, & P. Encarnação (Eds.), Assistive Technologies (Fifth Edition) (pp. 1–15). Mosby. https://doi.org/10.1016/B978-0-323-52338-7.00001-9

Crane, L., Chester, J. W., Goddard, L., Henry, L. A., & Hill, E. L. (2016). Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom. Autism, 20(2), 153–162. https://doi.org/10.1177/1362361315573636

Duncan, A., Ruble, L. A., Meinzen-Derr, J., Thomas, C., & Stark, L. J. (2018). Preliminary efficacy of a daily living skills intervention for adolescents with high-functioning autism spectrum disorder. Autism, 22(8), 983–994. https://doi.org/10.1177/1362361317716606

Feasibility of a Home-Based Tablet App for Dexterity Training in Multiple Sclerosis: Usability Study—ProQuest. (n.d.). Retrieved November 17, 2024, from https://www.proquest.com/docview/2511260919?parentSessionId=T8Anab50rD9pPb8iNOCeIYIkMowbrVcmyoMceRX%2FHAg%3D&pq-origsite=primo&accountid=11311&sourcetype=Scholarly%20Journals

Gentry, T. (2015). Mobile Technologies as Vocational Supports for Workers with Cognitive- Behavioral Challenges. Technology Special Interest Section Quarterly / American Occupational Therapy Association, 25(3), 1–4.

Glover, M., Liddle, M., Fassler, C., & Duncan, A. (2023). Microanalysis of Daily Living Skills in adolescents with Autism Spectrum Disorder without an intellectual disability. Journal of Autism and Developmental Disorders, 53(7), 2600–2612. https://doi.org/10.1007/s10803-022-05495-1

Goal attainment scaling—community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum. (n.d.). https://doi.org/10.1177/13623613211024492

Graham, I. D., Logan, J., Harrison, M. B., Straus, S. E., Tetroe, J., Caswell, W., & Robinson, N. (2006). Lost in knowledge translation: Time for a map? Journal of Continuing Education in the Health Professions, 26(1), 13–24. https://doi.org/10.1002/chp.47

Kientz, J. A., Hayes, G. R., Goodwin, M. S., Gelsomini, M., & Abowd, G. D. (2020a). Interactive Technologies and Autism, Second Edition. Springer International Publishing. https://doi.org/10.1007/978-3-031-01604-2

Kientz, J. A., Hayes, G. R., Goodwin, M. S., Gelsomini, M., & Abowd, G. D. (2020b). Mobile Applications. In J. A. Kientz, G. R. Hayes, M. S. Goodwin, M. Gelsomini, & G. D. Abowd (Eds.), Interactive Technologies and Autism, Second Edition (pp. 55–67). Springer International Publishing. https://doi.org/10.1007/978-3-031-01604-2_4

Lee, C. E., Shogren, K. A., Segal, J., Pezzimenti, F., Aleman-Tovar, J., & Taylor, J. L. (2022). Goal attainment scaling—community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum. Autism, 26(1), 178–187. https://doi.org/10.1177/13623613211024492

Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J. S., & Mailick, M. R. (2013). Evaluation of an activities of daily living scale for adolescents and adults with developmental disabilities. Disability and Health Journal, 6(1), 8–17. https://doi.org/10.1016/j.dhjo.2012.08.005

Marsack-Topolewski, C. N., Preethy, S. S., & Tarraf, W. (2021). Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden. PLoS One, 16(1), e0244844. https://doi.org/10.1371/journal.pone.0244844

Mechling, L. C., Gast, D. L., & Seid, N. H. (2009). Using a Personal Digital Assistant to Increase Independent Task Completion by Students with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 39(10), 1420–1434. https://doi.org/10.1007/s10803-009-0761-0

Muppidi, S., Wolfe, G. I., Conaway, M., Burns, T. M., Composite,  and the M., & Group, M.-Q. S. (2011). MG-ADL: Still a relevant outcome measure. Muscle & Nerve, 44(5), 727–731. https://doi.org/10.1002/mus.22140

Oeksnebjerg, L., Waldemar, G., & Woods, B. (2017). [td-p-021]: Using technology to support activities of daily living in people with dementia: optimizing development and implementation of a mobile app through participatory design and data-log analysis. Alzheimer’s & Dementia, 13(7S_Part_3), P167–P167. https://doi.org/10.1016/j.jalz.2017.06.2617

Olivieri, K. (2019). A Team Approach to Mobile Device Implementation for Transition-age Students with Autism Spectrum Disorders (ASD) [O.T.D., Boston University]. https://www.proquest.com/docview/2309522460/abstract/FF6A83C69814383PQ/1?sourcetype=Dissertations%20&%20Theses

PDHS. (2021, April). Everyday lives: Values in action. Pennsylvania Department of Human Services (PDHS). https://www.pa.gov/content/dam/copapwp-pagov/en/dhs/documents/docs/publications/documents/everyday-lives/Everyday%20Lives%CB%90%20Values%20In%20Action%20(c_241391).pdf

Pérez-Fuster, P., Sevilla, J., & Herrera, G. (2019). Enhancing daily living skills in four adults with autism spectrum disorder through an embodied digital technology-mediated intervention. Research in Autism Spectrum Disorders, 58, 54–67. https://doi.org/10.1016/j.rasd.2018.08.006

Ruble, L., McGrew, J. H., & Toland, M. D. (2012). Goal Attainment Scaling as an Outcome Measure in Randomized Controlled Trials of Psychosocial Interventions in Autism. Journal of Autism and Developmental Disorders, 42(9), 1974. https://doi.org/10.1007/s10803-012-1446-7

Shashidhara, Y. N., Raghavendra, G., Kundapur, P. P., & Binil, V. (2024). Effectiveness of Gerontechnology Empowerment Program on Awareness and Use of Mobile Apps Among Older Adults for Instrumental Activities of Daily Living: Protocol for a Cluster Randomized Controlled Trial. JMIR Research Protocols, 13, e53587. https://doi.org/10.2196/53587

Shogren, K. A., Dean, E. E., Burke, K. M., Raley, S. K., & Taylor, J. L. (2021). Goal Attainment Scaling: A Framework for Research and Practice in the Intellectual and Developmental Disabilities Field. Intellectual and Developmental Disabilities, 59(1), 7–21. https://doi.org/10.1352/1934-9556-59.1.7

Smith, L. E., Maenner, M. J., & Mailick-Seltzer, M. (2012). Developmental Trajectories in Adolescents and Adults With Autism: The Case of Daily Living Skills—ClinicalKey. Journal of the American Academy of Child & Adolescent Psychiatry, 51(6), 622–631. https://doi.org/10.1016/j.jaac.2012.03.001

Teh, S. E., Vo, L. T. V., & Bal, V. H. (2024). Factors that Influence the Daily Living Skills of Autistic Adults: The Importance of Opportunity. Journal of Autism and Developmental Disorders, 54(12), 4432–4443. https://doi.org/10.1007/s10803-023-06154-9

Waldman-Levi, A., Golisz, K., Swierat, R. P., & Toglia, J. (2019). Scoping review: Interventions that promote functional performance for adolescents and adults with Intellectual and Developmental Disabilities. Australian Occupational Therapy Journal, 66(4), 458–468. https://doi.org/10.1111/1440-1630.12577

Washington State Department of Social and Health Services. (2000). Life Skills Inventory Independent Living Skills Assessment Tool. https://www.elmbrookschools.org/uploaded/Documents/District_Documents/Transition_Resources/Life_Skills_Inventory.pdf

Wu, S. (2019). 157 Diabetes Self-Management Training with a Mobile APP among Older Adults in Taiwan: Comparative and Longitudinal Program Effectiveness. Age and Ageing, 48(Supplement_4), iv34–iv39. https://doi.org/10.1093/ageing/afz164.157

Yaar, E. (2023). SPAN-ASD: Pilot Implementation to Promote Functional Goals of Autistic Adolescents and Young Adults [Master’s, University of Haifa (Israel)]. https://www.proquest.com/docview/3098795841/abstract/8005482FCA4242D1PQ/1?sourcetype=Dissertations%20&%20Theses

Ye, Y., Zhang, L., Huang, L., Lei, M., Chen, L., Song, R., & Wang, J. (2023). Comparative efficacy of cognitive training and physical activity interventions delivered using technology-based or face-to-face approaches in patients with cognitive impairment: A systematic review and network meta-analysis. Alzheimer’s & Dementia, 19(S24), e082262. https://doi.org/10.1002/alz.082262

Yon-Hernández, J. A., Canal-Bedia, R., Wojcik, D. Z., García-García, L., Fernández-Álvarez, C., Palacio-Duque, S., & Franco-Martín, M. A. (2023). Executive functions in daily living skills: A study in adults with autism spectrum disorder. Frontiers in Psychology, 14. https://doi.org/10.3389/fpsyg.2023.1109561